|
 |
The Columbia Parkinson's Support Group (CPSG) was formed to provide SUPPORT, INFORMATION, EDUCATION, and to create AWARENESS for Parkinson's Disease (PD) patients; their care partners and caregivers; family members; and others who are working in related fields or have an interest in Parkinson's disease.
Click Here to learn more about us
Our support group offers the Parkinson's community an environment to obtain encouragement and support; news and information about PD research & clinical trials; information about special PD events and educational programs; other opportunities and information.
Click Here to see some of the things we do
The Columbia Parkinson's Support Group is located in the mid-lands of South Carolina; serving the counties of (but not limited to) Aiken, Calhoun, Fairfield, Kershaw, Lexington, Orangeburg, Newberry, Richland, Saluda, and Sumter.
We welcome all visitors and guests to our monthly meetings. There is no cost to attend our meetings.
Click Here for meeting information
|
|
September 21, 2008
Photo by Dottie Gantt |
|
|
We are 25 years old!
In January 1985, W. G. Rainey and a small group of individuals started our group because they felt there was a need for a support group for Parkinson's patients in the midlands of South Carolinas, their caregivers, and the community. The group was formally established on March 20, 1985. We will be celebrating our birthday all year long, and having special events.
Click Here for January Birthday Party Photos!
|
| What We Are Currently Recommending |
Video - PBS Frontline - "My Father, My Brother, and Me"
|
|
Video - The Charlie Rose Brain Series |
|
PBS Frontline's film, by correspondent Dave Iverson, "My Father, My Brother, and Me," explores Parkinson's Disease -- an illness that has affected several members of Iverson's family, including Iverson himself.
All of the members of our support group, who saw this video at our January 2010 meeting, highly recommend it. |
|
The Charlie Rose Brain Series is an exploration of advances being made in scientific research of the brain, of their contribution to our understanding of the world around us, and how these breakthroughs may be applied to improving human health.
Each of the episodes is well worth your time towards providing a better understanding of many areas of science - many in particular interest to the Parkinson's community. |
A Must Read! - "JADA Article/Paper - Parkinson Disease: Systemic and Orofacial Manifestations, Medical and Dental Management by Dr. Arthur H. Friedlander, et al"
While this article is a technical dental article, it is overall easy to read and contains excellent information for every Parkinson patient, their dentist or dental technician. Not only does it contain important information about dental care, it also contains a wealth of information about Parkinson's disease. This publication is a MUST READ BEFORE your next dental appointment. We suggest that you even give a copy to your dentist. [Permission to reprint provided by Doctor Arthur H. Friedlander 1/28/10]
Click here to view PDF version of this article |
Our support group will be participating in the first ever global quilt project. Details on our support group's participation will be coming soon! We will create our group’s quilt panel at one of our meetings. No sewing required!
The purpose of this Parkinson's Quilt Project is to focus the world's attention on the nearly one million people in the US and more than 4.1 million people worldwide living with Parkinson's disease (PD). The project aims to raise awareness of the impact that the disease has on people living with Parkinson's - along with their families, caregivers and friends - and our continued urgency to find a cure.
The Parkinson's Quilt will be displayed for the first time at the 2nd World Parkinson Congress in Glasgow, Scotland from September 28th through October 1, 2010. After this initial showing, blocks of the Quilt will be available through 2011 for renting to display at PD events. Details of this opportunity will be made available in 2010.
The Quilt will consist of panels made by individuals and groups affected by Parkinson's, in honor of the cause, of their group or in honor of their loved ones affected by Parkinson's.
|
|
Each individual panel will be two feet tall and two feet wide. Each block will consist of 16 panels sewn together. There is an opportunity for multiple support groups to create both panels and blocks. The quilt will have a maximum of 100 blocks. The Quilt Project will stop accepting registrations when 100 blocks are reached or June 1, 2010, whichever comes first.
Question: Do I need sewing or quilting experience?
Answer: No, be creative! Use items such as appliqué, paint, markers, stencils, collage, photos. If you are honoring or remembering a person, please include their name and details of their life such as hometown, special talents, and pictures.
For more answers to FAQs (frequently asked questions) on how you can create your own panel Click Here
You must pre-register to participate!
For more information on this worldwide Parkinson’s quilt project Click Here
We invite and encourage everyone affected by Parkinson's - people living with PD, caregivers, family members, friends and others - to contribute to the Parkinson's Quilt Project. You can donate money -or- You can create a panel for the quilt. The cost to enter one panel (sized of 2 feet 6 inches by 2 feet 6 inches square feet of material) is $25 to help offset the costs in assembling the quilts.
|
Visit Us Often
We will be updating our site often to help keep you informed about our support group and information about Parkinson's disease. We encourage you to let us know if there is something we can add or change to make our web site better for you.
You can also join us at the "Parkinson Round Table Blog" ~ A Great Place For Conversation, Discussion, and Exchange.
Thank You!
Thank you for visiting our web site; and thank you for supporting and caring for those with Parkinson's Disease.
|
|
In The Moment
“Every PD patient is unique and everything about his or her disease is specific to him or her and ONLY to him or her. PD has only one time - NOW, the present. The previous hours do not forecast how you are going to feel. The only thing that is predictable about this disease is its unpredictability.” ~~Written by Rick Kramer and Margaret Tuchman~~ |
|
|
