Prader-Willi Syndrome Association of South Carolina
W. Rhett Eleazer, President
1817 Pickens Street
Columbia, S.C. 29201
(803) 345-1384
Email:Prader-Willi Association of S.C.
Mission
Our mission is to provide information and networking between parents and professionals to help meet the needs of people affected by Prader-Willi Syndrome and their families, care givers, teachers, doctors, etc.
Goal
Our goal is to establish an ongoing list of professionals, doctors, genetic clinics as well as a list of parents who wish to be in touch with other parents, and support the Prader-Willi Syndrome Association of South Carolina and the National Prader-Willi Association.
About Prader-Willi Syndrome
PWS is a birth defect. There are no known causes for this genetic accident that causes this lifelong condition that affects about one in 15,000. Both sexes and all races are affected. There is no cure yet, only treatment.
PWS Characteristics include short stature, mental retardation or learning disabilities, incomplete sexual development, low muscle tone and a constant urge to eat. Individuals affected to not metabolize calories normally and that leads to obesity in most cases. Individuals are very much alike in their physical appearance and behaviors that include poor gross motor skills, speech and language difficulties, cognitive limitations, mood swing, behavior problems, high pain threshold, skin picking, and dental problems.
Contributions
The Prader-Willi Syndrome Association (USA) provides a vehicle of communication for parents, professionals, and other interested citizens. Supported solely by memberships and donations. The Prader-Willi Syndrome Association (USA) has made a diverence in the lives of many affected by this unique syndrome. You, too, can help.
For More Information Click on These Links
This page was created by Brenda Parker on October 11, 1999